Mason Ryder Langlais, 12, Dies After Battling Rare Disorders
In just 12 short years, Mason Ryder Langlais displayed more bravery and lightness than most individuals do in a lifetime.
Langlais, Mason Ryder
Langlais, Mason Ryder
Langlais, Mason Ryder
Langlais, Mason Ryder
Family friend Kaelyn Rhodes, who has been actively raising money for his parents, claims that Langlais was diagnosed with Dyskeratosis Congenita at the age of three. This rare genetic condition inhibits the production of bone marrow.
According to her, the Front Royal, Virginia resident had a liver transplant at age nine and a bone marrow transplant at age four.
“With each transplant, and many times in-between, he and his family had to rush and relocate to specialty hospitals for testing, monitoring, treatment and recovery,” Rhodes stated.
They stayed at Boston Children’s Hospital for nine months just for his bone marrow transplant. At age 8, he was put on a feeding tube; at age 9, he was put in a wheelchair; and most recently, he was put on oxygen all the time.
According to the GoFundMe created for the family, Langlais’s health declined in the final weeks before his death on Saturday, July 24.
Mason received a terminal prognosis this time, and additional preventative treatment steps were put on hold, according to Rhodes.
Plans were made for the youngster to come home and start receiving palliative (comfort) care for the rest of his life after his case was moved from UVA Medical Center to Hospice care.
According to the GoFundMe, Mason, who was only 12 years old, died during the hospital transfer to his home.
Mason was brave and a real fighter throughout his illness, according to Langlais’s obituary. His friends and family loved him very much.
Sammy Campbell will officiate a Celebration of Life at Maddox Funeral Home on Sunday, August 10 at 2:00 p.m.
According to the obituary, the 12-year-old is survived by his parents, Patrick M. Langlais and Jennifer L. Shell; his grandparents, Sharyn Mills; his mimi and pop pop, Tommy and Tammy Shell; his mawmaw, Judy Shell; his pops, Mike Langlais; two sisters, Jillian and Wynslie; and numerous aunts, uncles, cousins, and close friends.
People who adored Langlais have been leaving tributes in droves.
Denise Longmire Harder wrote on social media, “I just wanted to send my condolences to Patrick Langlais who lost his 12-year-old son this past Thursday.” “The loss you must experience in your heart, coupled with the relief that comes from knowing your kid is no longer in pain, is beyond my comprehension.
“I have no question that you made Mason’s three years as his primary caregiver amazing, and I know he has many memories to cherish.
According to Carol Vorous, who wrote this with the family’s consent, “I have raised money for many causes throughout my life, but this is undoubtedly one of the most difficult posts I’ve ever written.”
“Mason is Tammy’s grandson, and he has fought a terrible disease most of his young life,” she said. He really is one of the strongest children I have ever encountered.
Mason Ryder Langlais lived his life with heart and a spark that made everyone around him feel like they were part of something greater, according to a statement released by Team Telomere, an organization that empowers people affected by Telomere Biology Disorders (TBDs) all across the world.
The group added in an emotional letter, “Due to this rare diagnosis, Mason experienced several serious complications, including bone marrow failure, liver disease, and lung disease.” Mason’s twelve years were filled with more light and heart than most people’s lifetimes.
The youngster, according to Team Telomere executives, “made people feel seen, known, and loved.”
“He built LEGOs from hospital beds and made whole rooms laugh from behind an oxygen mask,” they continued. “For many, he was a source of strength and joy, a feisty companion, and a small advocate.
The group went on to say: He was unique not only because of his diagnosis but also because of who he was. Langlais’s light will accompany us on every journey.
You may find the GoFundMe that is helping Langlais’s family here.
The family has maintained their optimism and positivity despite all of the trauma and loss, constantly attempting to concentrate on the lessons and blessings this awful circumstance has bestowed upon them and others around them,” Rhodes continued.
“I can t think of anyone more deserving of help and a fresh start,” she said. “I have faith that they will use this loss to their advantage and support other families facing similar difficulties down the road.
